WEEK 10

Can any one say tormentful, when you start to dream of Doctors telling You, that you may as well suffocate your child coz you letting her suffer so bad..... You know then that this horrible skin condition is affecting you emotionally and mentally. this has once again been a very trying 2 weeks, my Daughters glands by her groin have swelled double and she has lumps coming out her neck from her glands swelling! not a very nice sight and  I have to sit and wonder HOW MUCH MORE!!!!!  I have moments where i feel like giving up, but then just think how far we have come, and how much she has already had to endure, who am I to rob her of that. I have realised that a simple birthday party, or a trip to the grocery store has become so much of a task that i rather not do either, my poor Rua is so miserable she barely even wants to be around people, and the fact that she wants me to rub her almost every minute of the day, doesnt really accommodate for a walk on the beach or a birthday party or even a trip to the mall. But we will hang in there! we have a Peads visit tomorrow, just to make sure that everything is ok with her glands and hoping he doesnt shout at me.