WEEK 10

Can any one say tormentful, when you start to dream of Doctors telling You, that you may as well suffocate your child coz you letting her suffer so bad..... You know then that this horrible skin condition is affecting you emotionally and mentally. this has once again been a very trying 2 weeks, my Daughters glands by her groin have swelled double and she has lumps coming out her neck from her glands swelling! not a very nice sight and  I have to sit and wonder HOW MUCH MORE!!!!!  I have moments where i feel like giving up, but then just think how far we have come, and how much she has already had to endure, who am I to rob her of that. I have realised that a simple birthday party, or a trip to the grocery store has become so much of a task that i rather not do either, my poor Rua is so miserable she barely even wants to be around people, and the fact that she wants me to rub her almost every minute of the day, doesnt really accommodate for a walk on the beach or a birthday party or even a trip to the mall. But we will hang in there! we have a Peads visit tomorrow, just to make sure that everything is ok with her glands and hoping he doesnt shout at me.

WEEK 8

I have started this blog on week 8, but let me tell You these past few weeks have not been easy at all. I am so grateful for my Mother in law who is there to help me, or else the sleepless nights and watching my child suffer day in and out would have given me a nervous break down.

The first 2 weeks were not so bad, and she looked almost like her normal eczema self, how ever that did not last long. The red, hot skin was our first indication that we were in fact dealing with red skin syndrome or TSW, We didn't know it would still get a whole lot worse!!!! we have had to deal with an extremely itchy daughter from midnight till at least 3 every night, she has scratched herself until her skin is raw and she bleeds, I also never knew that a little body like that could shed so much skin; we have to walk around after her cleaning up skin and laying towels and sheets where she sits and lies. This is not going to be a easy journey, but i have faith that it will be worth it, any Mother out there doesn't like to see their Child suffer, so knowing that YOU have made this decision and are putting them through this torment can break your heart.

We decided to try homoeopathic medicine to help relieve the inflammation and itchy skin, we saw an excellent homoeopath who FINALLY understood that what I'm doing would benefit my Child in the long run, instead of looking at me like I'm some kind of child torturer. any way he has given us stuff but also said it will take a few WEEKS to start working ....... PATIENCE is definitely something I have learnt in the last few weeks, and to trust and rely on God for healing and not on STEROIDS! lets see how this next week goes, stay strong fellow sufferers there is always a light at the end of a tunnel.

The day it all began

My Daughter Rua is 3 years old, she has suffered with atopic eczema since she was 2 months old, and has been on steriod creams and syrups for the same amount of time. Not once did I ever stop and think that this could actually be making her worse. It is only by accident and Gods grace that I stumbled onto a blog about a young girl that suffered with Red skin syndrome, and realised that at that very moment those were Rua’s symptoms. she had been off cortisone cream for 2 weeks and I had decided to exclude any allergen from her diet, I could not take watching my poor Girl go through what she was going through……..(luckily we didnt get to her having almost everything from her diet taken away), but it was then that I stumbled on the blog and the ITSAN website, in a very odd way I was relieved, we had almost come to a place where we thought she might never heal from this monster…… and then our humbling journey began.